Starting YOUR Treatment Journey?
Explore support and resources as you get started with treatment.
Get ready for your LUMRYZ journey
Once your healthcare provider prescribes LUMRYZ, it's helpful to have a clear picture of what steps should come next. This timeline provides an overview of the typical stages of your journey with LUMRYZ.
Download Timeline PDF
You are never alone on your LUMRYZ treatment journey
Explore each role played in supporting your treatment experience
RYZUP Support Services Nurse Care Navigator (NCN) Team
You will have 2 NCNs dedicated to helping you: one for insurance and access and one for ongoing treatment support.
Healthcare Provider
Partners with you to create your treatment plan and answers your medical questions.
Specialty Pharmacy
Arranges your shipments of LUMRYZ after your prescription is processed and answers product-related questions.
Your NCN team will help you access, start, and stay on track with your LUMRYZ treatment plan.
Available to help you prepare for check-ins with your healthcare team
Will work directly with your healthcare team to help navigate your insurance
Can initiate a 3-way phone call with your specialty pharmacy if you have questions regarding your shipment status
Keep this detailed support guide with you as a reminder of the support available throughout your journey.
Your NCN team is here to help every step of the way
Your first conversations will focus on getting you started on treatment. Your NCNs can help with things like:
Coverage
Your NCN will work with your healthcare provider and insurance provider to help determine coverage and your out-of-pocket costs.
Financial Assistance
Your NCN will help connect you with financial assistance, if you qualify.
Approval
Your NCN is here to support you with any insurance- related challenges or changes during your treatment. They will keep you updated, but always feel free to reach out with questions.
Delivery
Your specialty pharmacy will call to schedule your first LUMRYZ shipment. Make sure you return any missed calls right away, as LUMRYZ cannot ship without your approval.
Avadel Pharmaceuticals is committed to helping patients access, start, and stay on track with their LUMRYZ treatment plan. That’s why we offer support services to help in navigating access to LUMRYZ and provide financial assistance programs to those who qualify.
Your NCN will check in regularly via phone and email and is also available if you have questions or feel unsure about next steps. You can reach your NCN at 1-844-485-7636 from 8:00 AM to 8:00 PM Eastern Time, Monday through Friday.
Tyler’s experience working with HIS NCN
“Insurance and co-pays and prior authorizations are extremely confusing for me, especially because I’m a college student and take care of things like health insurance by myself.
RYZUP Support Services has been great at guiding me through that process. They also make sure that I get ahead of when I need my medicine and that my delivery is scheduled.”
—Tyler F., living with narcolepsy and treating with LUMRYZ
Tyler was compensated by Avadel Pharmaceuticals for his time. Individual results may vary.
What to expect with taste and texture
LUMRYZ contains a unique extended-release formulation. What this may mean as you prepare, shake, and take* LUMRYZ:
Mixing
Your dose will not fully dissolve in water,† even after shaking thoroughly in the mixing cup.
Texture
Because your dose will not fully dissolve, the texture will appear gritty and slightly milky with some granules that stick together even when fully mixed.
Taste
Your dose has a salty taste.
Residue
Make sure to take your full dose. After drinking, immediately fill the mixing cup to line B with water,† shake for 10 seconds, and drink the rest. There may be residue around the cup after you take your dose.
Empty any unused LUMRYZ down the sink drain the next day. Clean the mixing cup by rinsing it with water and letting it dry before each use.
*These instructions are not complete. Please see Instructions for Use for complete administration directions.
†Do not use hot water.
About your LUMRYZ sodium oxybate
The active ingredient of LUMRYZ is sodium oxybate. While the exact way sodium oxybate works is unknown, it’s thought to affect the parts of your brain linked to symptoms of excessive daytime sleepiness (EDS) and cataplexy—all while you sleep.
Everyone's treatment experience is different
It may take time to notice a difference in your daytime symptoms. In the clinical trial for LUMRYZ, some participants saw significant symptom improvements as early as week 3, while others saw symptom improvements at week 13 after titrating to a 9-g dose.
“I like to touch base with our patients about 2 weeks after they've initiated therapy and then I like to see them back in the office on roughly week 3 or 4.
This timing gives us the opportunity to address any treatment initiation related side effects, and to give them guidance as what to do or what they may experience as they're titrating through the doses.
I always encourage them to communicate with us if they're experiencing side effects or have questions about how they are feeling so we can provide guidance as to what they should do."
See how LUMRYZ fits into your bedtime routine
Katie’s bedtime routine
“I like to use my bedtime routine to wind down after my day. I read something just for fun, brush my teeth, and wash my face. Once I’m in bed, I prep and take my LUMRYZ dose, then think about what I’m going to do the next day as I fall asleep.”
—Katie L., living with narcolepsy and treating with LUMRYZ
Katie was compensated by Avadel Pharmaceuticals for her time. Individual results may vary.
